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Dupixent

Officially restarting dupixent tomorrow. Took a month from getting insurance, going to specialist, figuring out the specialty script again, prior auth etc etc. It will finally be shipped to me tomorrow. Dupixent enables me to breathe better and not be hivey. Being without it has… Read More »Dupixent

Flail

So flailing the arm when I started to slip extended my range of motion significantly, which is great because holy fuck I could not rotate my right arm to the right at all and now I have more normal ROM. Except now I am having… Read More »Flail

Brain Spins

omg y’all having snips of songs on repeat in my head again is definitely a different experience and adds layers of difficulty to remaining calm that I have not needed to deal with because my sleep and frustration levels were more level(ish) KITTY KITTY KITTY… Read More »Brain Spins

Suicidal ideation

Just casually dreaming about slowly overdosing myself on meds while hanging out with people. Downing small handfuls of sedatives at a time. Telling people I just really need a nap. Yesterday’s dream was great. This morning not so much. I know this is not what… Read More »Suicidal ideation

Ugh.

Yesterday was terrible.Could barely move.Migraine so bad I couldn’t keep my eyes open Bad dizzy episode,fell into a tablebroke one of my sisters nice flower pots Threw up from migraine. The rain brought relief. I want to rest and play catchup at the same time… Read More »Ugh.

No Aleve

I don’t do well without naproxen.My jaw is on fire. Can barely eat anything harder than a grape.Right hip has been silently screaming so bad I can’t lay down comfortably. Which means my sleep is terrible.All of my joints have arthritis flares, some are so… Read More »No Aleve

As we age

I’m seeing a trend ….ADHD Cerebral PalsyHypermobility/ EDSI’m sure there are five million more ALL THINGS DOCTORS SAY GET BETTER AS YOU AGE IT IS A LIE.

Dye

The urge to dye your hair Specifically when you can’t Ugh.

Been Awhile

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therapy last week, was not a great session. She was concerned and worried about me because of stress levels,  and recommended I use my DBT skills. I have been. I’m surrounded by sensory objects and activities for bad days.I will think I’m handling stress well… Read More »Been Awhile

PM+R

Corewell health does not have any pm+r around here, but henry Ford does. Several. Within 15 min. So after derm appointment today I’m calling down the list for accepting new patients with my insurance

Food Motivated

If you are trying to get me to do something, I, like many feral animals, am extremely food motivated. I used to watch the seagulls at Metro Beach in the summer, full of summer day camp field trips and fallen food. I learned from the… Read More »Food Motivated