I’m saying the same things to people over and over again so here’s some info about cerebral palsy and me and why I don’t look like your cousin in a wheelchair in braces. I probably should be wearing braces tho (for a separate problem).

Like everything else, the severity and type of symptoms vary. At it’s most basic breakdown, cerebral palsy disorders affect how I move and my balance.

Types of Cerebral Palsy, from the CDC website
“Depending on which areas of the brain are affected, one or more of the following movement disorders can occur:

Stiff muscles (spasticity)
Uncontrollable movements (dyskinesia)
Poor balance and coordination (ataxia)”

And then you can also have more than one or all of these, in different levels of severity.

I deal with all of them.

My biggest problems, that cause the most pain and are a problem I am fighting against almost all the time, are the stiff muscles and uncontrollable movements. But I also deal with balance and coordination issues.

Most of the time I’m not flinging my arms around, it’s just little twitches or tremors around my body, but sometimes an arm does flail. And, as many of you have been listening to me complain about for years and years and years – chronic muscle spasms, which leads us down the road to stiff muscles. My problem areas are my shoulders and neck, mid back, and pelvis. Some of the muscles inside my pelvis are so tight, I cannot release them, which causes pain through my hips and legs when walking. My muscles working like this all the time causes fatigue and exhaustion. All those “I’m tired”s over the years feeling like I can’t get off the couch have a very good reason.

I also experience the feeling like I’m falling a lot. Walking in a straight line can be difficult sometimes. I have a hard time with coordination for the weirdest things – example: I cannot grasp and pull effectively with my pointer finger and thumb, which was really hard for me to identify what the specific problem was because I otherwise have great hand and finger dexterity, but I can’t make my hands do many things I see in video tutorials.
Hand physical therapy is on the list.

I am still diagnosed with many other things. Cerebral palsy may or may not be the cause of or exacerbate them.

The cerebral palsy diagnosis did not remove the fibromyalgia or myofascial pain diagnosis. Those issues are in addition to.

The cerebral palsy diagnosis did not remove any mental health diagnosis. The mental health issues are in addition to.

The cerebral palsy diagnosis did not remove neurological diagnostics like social pragmatic communication disorder and ADHD. These are in addition to.

The cerebral palsy did not remove my pelvic pain diagnostics.

The cerebral palsy did not remove my hyperflexibility diagnostics.

Inflammation issues may be both related and separate. My skin issues are probably not related.

All of these issues I deal with can gang up on me and work together to make my life hell, or many can act solo for a few weeks or months. The chronic issues are made worse and better by many things, such as mood, nutrition, stress, the weather, virus or bacterial infections, etc.

If you haven’t seen me in a while, most of the time I am using a cane now for balance. Sometimes I use it to help support myself. I’m not embarrassed about saying I need to sit down all the time.

So. There’s a fun update. Let me know if you have any questions 🙂


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